Topics: Luminaries Lecture Series

Addressing the HIV/AIDS Pandemic: Ethical Challenges

Last Modified: June 26, 2020
https://youtu.be/Y3RpG-4_3IE Reflecting on his 30 years as Director of the National Institute of Allergy and Infectious Disease, Anthony Fauci, M.D. speaks at PRIM&R about historical issues ...

Big Data, Privacy, and the Public Good

Last Modified: June 26, 2020
Julia Lane, Ph.D., delivered the keynote address at the OHRP Research Community Forum co-sponsored with Hackensack University Medical Center in New Jersey. Her presentation explored the challenges of...

Connected and Open Research Ethics: Ethical Research Using Personal Health Data

Last Modified: June 26, 2020
Camille Nebeker, Ed.D., M.S., gave the keynote address at an OHRP sponsored RCF in Hartford, Connecticut, speaking about the ethical use of personal health data and data from mobile technologies in r...

Ethics & Social Justice in Health Research Involving Vulnerable Adolescents

Last Modified: June 26, 2020
Celia B. Fisher, Ph.D. is the Marie Ward Doty University Chair in Ethics and Professor of Psychology at Fordham University. Dr. Fisher gave the keynote address at an OHRP sponsored Research Community...

How Do You Know What You Think You Know?

Last Modified: June 26, 2020
Richard Gorman, M.D. is the Associate Director for Clinical Research at the Division of Microbiology and Infectious Disease at the National Institute for Allergy and Infectious Disease at NIH. Dr. Go...

Improvised Exemptions: A Soloist’s Perspective

Last Modified: June 26, 2020
Joe Konstan, PhD, Distinguished McKnight Professor and Distinguished University Teaching Professor of Computer Science and Engineering at the University of Minnesota, gave a plenary speech at an OHRP...

Jazz, Blues, and Improvisation – the Changing Rhythms of Ethical Clinical Research

Last Modified: June 26, 2020
Christine Grady, PhD, Chief of the Department of Bioethics at the NIH Clinical Center, delivered a thought-provoking keynote address at the OHRP RCF in September 2017 in Cincinnati, Ohio. The co-host...

Reexamining the Right Not to Know

Last Modified: June 26, 2020
Benjamin E. Berkman, J.D., M.P.H., gave a plenary address at the OHRP Research Community Forum co-sponsored with Hackensack University Medical Center in New Jersey in April 2017. His presentation add...

Regulating Social Media and Internet Research: Public, Private, or What?

Last Modified: June 26, 2020
Ivor Pritchard, Ph.D. is Senior Advisor to the Director at OHRP. Dr. Pritchard’s plenary address at an OHRP-sponsored Research Community Forum in October, 2016 discussed how human research regulation...

Return of Research Test Results

Last Modified: June 26, 2020
Mark Barnes, J.D. is a Partner at Ropes and Gray LLP, faculty co-chair of the Multi-Regional Clinical Trials Center at Harvard and Brigham and Women’s Hospital, and lecturer at Yale Law School and Ya...

The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting

Last Modified: June 26, 2020
Joni Rutter, PhD, Director of Scientific Programs for the All of UsResearch Program (an NIH initiative that seeks to advance precision medicine), was the keynote speaker at an OHRP sponsored RCF in A...

The All of Us Research Program: An Overview and Focus on Genetics Research & Consenting

Last Modified: June 26, 2020
Joni Rutter, PhD, Director of Scientific Programs for the All of UsResearch Program (an NIH initiative that seeks to advance precision medicine), was the keynote speaker at an OHRP sponsored RCF in A...

The Impact of Personalized Medicine for Cancer Patients through Big and Small Data

Last Modified: June 26, 2020
Stuart L. Goldberg, M.D., delivered a plenary presentation at the OHRP Research Community Forum co-sponsored with Hackensack University Medical Center in New Jersey, on the exciting opportunities of ...