Luminaries Lecture Series


February 12, 2018

Addressing the HIV/AIDS Pandemic: Ethical Challenges

Reflecting on his 30 years as Director of the National Institute of Allergy and Infectious Disease, Anthony Fauci, M.D. speaks at PRIM&R about historical issues at the intersection of science, medicine, bioethics, policy, and politics. He recalls some of the difficult choices faced in the early years of the HIV/AIDS epidemic and connects them to…


Ethics & Social Justice in Health Research Involving Vulnerable Adolescents

Celia B. Fisher, Ph.D. is the Marie Ward Doty University Chair in Ethics and Professor of Psychology at Fordham University. Dr. Fisher gave the keynote address at an OHRP sponsored Research Community Forum in April 2016 in Miami, Florida. Her presentation discussed ethical challenges and regulatory considerations in research with vulnerable and marginalized at-risk adolescent…


How Do You Know What You Think You Know?

Richard Gorman, M.D. is the Associate Director for Clinical Research at the Division of Microbiology and Infectious Disease at the National Institute for Allergy and Infectious Disease at NIH. Dr. Gorman gave the keynote address at an OHRP sponsored RCF in June 2016, on the design and conduct of clinical trials, the potential biases and…


Return of Research Test Results

Mark Barnes, J.D. is a Partner at Ropes and Gray LLP, faculty co-chair of the Multi-Regional Clinical Trials Center at Harvard and Brigham and Women’s Hospital, and lecturer at Yale Law School and Yale School of Medicine. Mr. Barnes gave a plenary presentation at an OHRP sponsored RCF in Hartford, Connecticut addressing the contradictory regulatory…


Regulating Social Media and Internet Research: Public, Private, or What?

Ivor Pritchard, Ph.D. is Senior Advisor to the Director at OHRP. Dr. Pritchard’s plenary address at an OHRP-sponsored Research Community Forum in October, 2016 discussed how human research regulations pertain to social media and internet research, and how changing conceptions of privacy impact the ethics of research using social media and the internet. Watch: Regulating…


Connected and Open Research Ethics: Ethical Research Using Personal Health Data

Camille Nebeker, Ed.D., M.S., gave the keynote address at an OHRP sponsored RCF in Hartford, Connecticut, speaking about the ethical use of personal health data and data from mobile technologies in research. Dr. Nebeker is an Assistant Professor of Behavioral Medicine, Family Medicine, and Public Health in the UC San Diego School of Medicine. Watch:…


Reexamining the Right Not to Know

Benjamin E. Berkman, J.D., M.P.H., gave a plenary address at the OHRP Research Community Forum co-sponsored with Hackensack University Medical Center in New Jersey in April 2017. His presentation addressed various aspects of individuals’ choice whether to receive information about genetic incidental findings that might arise in clinical care or research, and ethical considerations related…


The Impact of Personalized Medicine for Cancer Patients through Big and Small Data

Stuart L. Goldberg, M.D., delivered a plenary presentation at the OHRP Research Community Forum co-sponsored with Hackensack University Medical Center in New Jersey, on the exciting opportunities of tailoring and maximizing value in cancer care through effective data-mining and management. Dr. Goldberg is hematologist/oncologist and Chief Medical Officer of COTA (Cancer Outcomes Tracking and Analysis),…


Improvised Exemptions: A Soloist’s Perspective

Joe Konstan, PhD, Distinguished McKnight Professor and Distinguished University Teaching Professor of Computer Science and Engineering at the University of Minnesota, gave a plenary speech at an OHRP sponsored RCF in Cincinnati, Ohio. The co-hosts of the RCF, Cincinnati Children’s Hospital Medical Center, Schulman IRB, University of Cincinnati, University of Kentucky Office of Research Integrity, Cincinnati…


Big Data, Privacy, and the Public Good

Julia Lane, Ph.D., delivered the keynote address at the OHRP Research Community Forum co-sponsored with Hackensack University Medical Center in New Jersey. Her presentation explored the challenges of preventing re-identification of individuals represented in large datasets while maintaining the utility of the information for research purposes. Dr. Lane is a professor at the Center for…



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